RareMe Hana Nui: Polokalamu Kelepona Lima na Cong Fang, Shijian Luo and Jingzhao Pan

ʻO RareMe Hana Nui: Polokalamu Kelepona Lima na Cong Fang, Shijian Luo and Jingzhao Pan he mea lanakila hanohano loa o ka 2021 A' Design Award Keleawe ma ka Māhele Hoʻokūkū Hoʻolālā Paʻalima, Polokalamu a me Lako Paʻalima.

KeleawePaʻalima· 2021

RareMe Hana Nui: Polokalamu Kelepona Lima

na Cong Fang, Shijian Luo and Jingzhao Pan

Mea Kūʻai: Zhejiang University

Mea Lanakila A' Design Award Keleawe ma ka Māhele Paʻalima

16,439

Mea Lanakila i Hōʻoia ʻIa

Hōʻoia i ke Kūlana Makana no #111937

Nānā ma A' Design Award Hoʻolaha Nūhou Hōʻailona Makana

Nā Waihoʻoluʻu

Ka Hoʻolālā

E Pili Ana iā RareMe Hana Nui: Polokalamu Kelepona Lima

Kikokikona Puke: ʻO RareMe kahi polokalamu kelepona lima no ka poʻe i loaʻa i nā maʻi kakaʻikahi. Hoʻopili ʻo RareMe i nā mea maʻi a me ko lākou ʻohana me nā haukapila, nā hui olakino, nā hale lāʻau, nā kauka a me ka poʻe hana lāʻau. Koho nā mea hoʻohana i kahi kuleana ma ke ʻano he mea maʻi, he lālā ʻohana, a i ʻole he mea hāʻawi mālama olakino i ka wā e kākau inoa ai. Hiki i nā mea maʻi ke kākau i nā puke lā e pili ana i kā lākou mālama ʻana, ʻimi i nā lāʻau a me nā mālama olakino ma ka honua holoʻokoʻa, a loaʻa nā mea hoʻohana ʻē aʻe me nā kūlana like ma o kahi ʻalcalula ʻōlelo koho. Loaʻa ka polokalamu ma iOS a me Android. ʻO ka pahuhopu, ʻo ia ka hāʻawi ʻana i ka nānā like a me ka mālama like i nā mea maʻi kakaʻikahi.

Ka Hoʻomaikai

E Pili Ana i ka A' Design Award Keleawe

Ua lanakila ka hoʻolālā RareMe Hana Nui: Polokalamu Kelepona Lima i ka A' Design Award Keleawe, he ʻike hoʻohanohano nui loa i hāʻawi ʻia i nā hoʻolālā kūʻokoʻa i ʻike ʻia ma o ka hana noʻeau, ka akamai a me ka makakoho. He mau hana mākaukau a hana noʻeau kupaianaha nā lanakila Keleawe e hōʻoia ana i ka ʻike nui, ka noʻonoʻo a me ka maʻalea o kā lākou poʻe hoʻolālā. Manaʻo ʻia ʻo ka hoʻolālā RareMe Hana Nui: Polokalamu Kelepona Lima he mea i mahalo nui ʻia, hoʻohiwahiwa ʻia a aloha ʻia, he ʻoihana a hou loa. ʻO kēia hoʻolālā i lanakila i ka A' Design Award Keleawe e hoʻohui ana i nā hana maikaʻi loa o ka hana noʻeau, ka ʻepekema, ka hoʻolālā a me ka ʻenehana, a maikaʻi no kona nānā ʻana i nā kikoʻī. Hoʻokō maikaʻi ka hoʻolālā RareMe Hana Nui: Polokalamu Kelepona Lima i nā pono, hoʻopā i ka makemake, hoʻohiwahiwa i nā manaʻo a huki i ka makemake e ʻike.

Ma Hope o ka Hoʻolālā

ʻEke Nūhou

Nā hōʻoia, nā lālā hui a me nā kikoʻī ʻenehana i hāʻawi ʻia e ka mea hoʻolālā.

Nā ʻAno Kūʻokoʻa: Rare diseases are currently affecting about 300 million patients worldwide. Due to their rare conditions, they cannot get the same degree of treatment and assistance as normal patients, especially in some developing countries. RareMe helps rare diseases patients with their recovery and therapy. By connecting with global medical research, institutions, hospitals, doctors, and drug developers, they can receive equal attention and care.
Nā Ana a me ka Hoʻopili: Launched on IOS and Android
Nā Lepili: Rare Disease, app, patients, crowd-funding, mutual aid
ʻEnehana Hana: RareMe is an APP,which connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc. It also links rare disease patients with similar conditions with medical workers through intelligent recommendation algorithm, so as to make them feel not alone.
Pilikia Hoʻolālā: RareMe connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc.

The biggest problem is to contact all stakeholders, promote app through hospitals, medical institutions, and major media platforms, so that patients scattered around the world can know and join RareMe. With the help of a large number of patients gathering to solve the problem of drug research and distribution by low-cost crowdfunding.
Noiʻi: Rare diseases are currently affecting 3.5% - 5.9% of the worldwide population. There are more than 7,000 rare diseases known in the world, however, only less than 10% of the diseases have approved treatment drugs or programs.

Based on this huge social problem, we have conducted extensive interviews with medical professors of Harvard University and Medical Laboratory of Zhejiang University, and are eager to connect rare disease patients around the world in a simple and portable way. We have connected many medical workers and patients via the development of RareMe. In order to improve this current condition, we will add in more and more health-care providers in the future.
Hoʻoulu Manaʻo: Rare diseases are lately affecting 3.5% - 5.9% of the worldwide population. More than 7,000 rare diseases are known, however, only less than 10% have approved treatment cures or programs. Due to the patients’ rare conditions, they’re not able to get the same degree of care and assistance as normal patients. Moreover, proper medicines and treatments are not available in some developing countries. They have few wardmates to communicate with, either.
Ka Lōʻihi o ka Papahana: This project started in September 2019 in Hangzhou, China, and it is still under developing.
Kaʻina Hana: At the beginning of registration, user will choose their own role as patients/family members or health-care providers, then enter the home page. Patients can write disease fighting diaries, seek for other users who have similar syndromes and fight together. They can also seek drugs and treatments around the world. As for health-care providers, they can contact patients quickly via RareMe and offer help.
Nā Lālā Hui: Cong Fang
Shijian Luo
Jingzhao Pan
Tianhe Zhang
Huan Lin
Nā Kuleana Kiʻi: The four images used in the app design are from the SHETU website(https://699pic.com/), and have been authorized. The authorization agreement is shown in the link
Link: https://pan.baidu.com/s/1-s5VTAN_XWqHc2ZyToIegQ
Password：70bo