RareMe Galuega Autu: Polokalame Feaveaʻi e Cong Fang, Shijian Luo and Jingzhao Pan

O le mamanu RareMe Galuega Autu: Polokalame Feaveaʻi e Cong Fang, Shijian Luo and Jingzhao Pan o se manumalo maualuga tele o le fa'ailoga mamalu 2021 A' Design Award Apamemea i le Vaega Tauva Mamanu Fe'avea'i.

ApamemeaFe'avea'i· 2021

RareMe Galuega Autu: Polokalame Feaveaʻi

na mamanuina e Cong Fang, Shijian Luo and Jingzhao Pan

Tagata Fa'atau: Zhejiang University

Manumalo o le A' Design Award Apamemea i le Vaega Fe'avea'i

15,634

Manumalo Fa'ailoga Fa'amaonia

Fa'amaonia le Tulaga o le Fa'ailoga mo #111937

Va'ai i le A' Design Award Fa'asalalauga Pailesi o le Fa'ailoga

Lanu

Le Mamanu

E Uiga ia RareMe Galuega Autu: Polokalame Feaveaʻi

Tusitusiga o le Tusi: O le RareMe o se polokalame feaveaʻi mo tagata ua aʻafia i faʻamaʻi seāseā. E fesoʻotaʻi e le RareMe tagata mamaʻi ma o latou aiga i falemaʻi, faʻalapotopotoga faafomaʻi, fale talimalo vailaʻau, fomaʻi ma ē e fatuina vailaʻau. E filifili tagata faʻaaogā se matafaioi e pei o se tagata mamaʻi, se sui o le aiga poʻo se tagata e tuʻuina atu tausiga faʻalesoifua maloloina i le taimi o le lesitalaina. E mafai e tagata mamaʻi ona tusia talafaasolopito e uiga i la latou togafitiga, saʻili vailaʻau ma togafitiga i le lalolagi atoa, ma maua isi tagata faʻaaogā e tutusa a latou tulaga e ala i se algorithm faʻatonutonu. O loʻo maua le polokalame i luga o iOS ma Android. O le faʻamoemoe o le tuʻuina atu lea i tagata mamaʻi i faʻamaʻi seāseā se gauai tutusa ma le tausiga tatau.

Le Fa'ailogaina

E Uiga i le A' Design Award Apamemea

O le A' Design Award Apamemea na manumalo ai RareMe Galuega Autu: Polokalame Feaveaʻi, o se faamaoniga matuā mamalu e tuuina atu i mamanu ese e iloga i le fatufatuaʻi, le atamai ma le poto. O ē manumalo i le Apamemea o mea e iai le tomai atoa ma fatufatuaʻi mataʻina e faamaonia ai le poto masani tele, le mafaufau ma le atamai o tagata mamanu. E faamoemoeina RareMe Galuega Autu: Polokalame Feaveaʻi e avea ma mea e vivii tele, ua pelepelea, e iloga i le tomai faapolofesa ma mea fou. O lenei mamanu na manumalo i le A' Design Award Apamemea e tuufaatasia ai faiga sili i le faatufugaga, saienisi, mamanu ma tekonolosi ma e sili ona lelei i le mataituina o mea itiiti. RareMe Galuega Autu: Polokalame Feaveaʻi e faamalieina matagofie manaʻoga, pa i manaʻo, faalataina lagona ma faaosofia le fia iloa.

I Tua o le Mamanu

Pepa Fa'asalalau

Fa'amaoniaga, sui o le 'au ma fa'amatalaga fa'atekinisi na saunia e le tagata mamanu.

Uiga Fa'apitoa: Rare diseases are currently affecting about 300 million patients worldwide. Due to their rare conditions, they cannot get the same degree of treatment and assistance as normal patients, especially in some developing countries. RareMe helps rare diseases patients with their recovery and therapy. By connecting with global medical research, institutions, hospitals, doctors, and drug developers, they can receive equal attention and care.
Fua & Fa'apipi'i: Launched on IOS and Android
Fa'ailoga: Rare Disease, app, patients, crowd-funding, mutual aid
Tekonolosi Gaosiga: RareMe is an APP,which connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc. It also links rare disease patients with similar conditions with medical workers through intelligent recommendation algorithm, so as to make them feel not alone.
Lu'itau o le Mamanu: RareMe connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc.

The biggest problem is to contact all stakeholders, promote app through hospitals, medical institutions, and major media platforms, so that patients scattered around the world can know and join RareMe. With the help of a large number of patients gathering to solve the problem of drug research and distribution by low-cost crowdfunding.
Su'esu'ega: Rare diseases are currently affecting 3.5% - 5.9% of the worldwide population. There are more than 7,000 rare diseases known in the world, however, only less than 10% of the diseases have approved treatment drugs or programs.

Based on this huge social problem, we have conducted extensive interviews with medical professors of Harvard University and Medical Laboratory of Zhejiang University, and are eager to connect rare disease patients around the world in a simple and portable way. We have connected many medical workers and patients via the development of RareMe. In order to improve this current condition, we will add in more and more health-care providers in the future.
Fa'aosofia: Rare diseases are lately affecting 3.5% - 5.9% of the worldwide population. More than 7,000 rare diseases are known, however, only less than 10% have approved treatment cures or programs. Due to the patients’ rare conditions, they’re not able to get the same degree of care and assistance as normal patients. Moreover, proper medicines and treatments are not available in some developing countries. They have few wardmates to communicate with, either.
Umi o le Poloketi: This project started in September 2019 in Hangzhou, China, and it is still under developing.
Fa'agasologa o Galuega: At the beginning of registration, user will choose their own role as patients/family members or health-care providers, then enter the home page. Patients can write disease fighting diaries, seek for other users who have similar syndromes and fight together. They can also seek drugs and treatments around the world. As for health-care providers, they can contact patients quickly via RareMe and offer help.
Sui o le 'Au: Cong Fang
Shijian Luo
Jingzhao Pan
Tianhe Zhang
Huan Lin
Fa'aaloaloga o Ata: The four images used in the app design are from the SHETU website(https://699pic.com/), and have been authorized. The authorization agreement is shown in the link
Link: https://pan.baidu.com/s/1-s5VTAN_XWqHc2ZyToIegQ
Password：70bo