RareMe Ngwa Mkpanaka Ekwentị nke Cong Fang, Shijian Luo and Jingzhao Pan

Ihe emepụtara bụ RareMe Ngwa Mkpanaka Ekwentị nke Cong Fang, Shijian Luo and Jingzhao Pan bụ onye meriri a na-asọpụrụ nke ukwuu nke 2021 Ihe Nrite A' Design Award nke Bronz na Udi Asọmpi Nhazi Teknụzụ Mkpanaka, Ngwa na Sọftụwia.

BronzMkpanaka· 2021

RareMe Ngwa Mkpanaka Ekwentị

nke Cong Fang, Shijian Luo and Jingzhao Pan

Onye Ahịa: Zhejiang University

Onye Meriri Ihe Nrite A' Design Award nke Bronz na Udi Mkpanaka

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Onye Meriri Onyinye A Kwadoro

Nyochaa Ọnọdụ Onyinye maka #111937

Lee na A' Design Award Akụkọ Mgbasa Ozi Akara Onyinye

Agba

Nhazi a

Maka RareMe Ngwa Mkpanaka Ekwentị

RareMe bụ ngwa mkpanaka ekwentị maka ndị ọrịa ọdachi na-arịa na-emetụta. RareMe na-ejikọta ndị ọrịa na ezinụlọ ha na ụlọ ọgwụ, ụlọ ọrụ ahụike, ụlọ ahịa ọgwụ, ndị dọkịta na ndị na-emepụta ọgwụ. Ndị ọrụ na-ahọrọ ọrụ ha dị ka onye ọrịa, onye òtù ezinụlọ ma ọ bụ onye na-enye ọrụ ahụike n'oge ha na-edebanye aha. Ndị ọrịa nwere ike ide akwụkwọ akara banyere ọgwụgwọ ha, chọọ ọgwụ na ọgwụgwọ n'ụwa niile, na-achọtakwa ndị ọrụ ndị ọzọ nwere ọnọdụ yiri nke ha site na algọridim nnyocha. Ngwa a dị na iOS na Android. Ebumnobi ya bụ inye ndị ọrịa na-arịa ọrịa ọdachi nlekọta na uche ha kwesịrị.

Nkwanye Ugwu

Maka Ihe Nrite A' Design Award nke Bronz

RareMe Ngwa Mkpanaka Ekwentị meriri A' Design Award nke Bronz, nnabata dị oke ugwu e nyere design ndị pụtara ìhè nke a ma ama maka nzụlite ihe, ọgụgụ isi na nghọta. Ndị meriri na Bronz bụ ihe e mere nke ndị nwere nka nke ukwuu ma dị mma n'imepụta nke na-egosi ahụmahụ buru ibu, echiche na ọgụgụ isi nke ndị designer ha. A na-atụ anya na RareMe Ngwa Mkpanaka Ekwentị ga-abụ ihe a na-asọpụrụ nke ukwuu, a na-eto na a hụrụ n'anya, nke dị oke ọrụ ma dị ọhụrụ. Design a meriri A' Design Award nke Bronz na-agụnye ụzọ kacha mma n'ime nka, sayensị, design na teknụzụ, ma dị mma nke ukwuu maka nlebara anya ya n'obere ihe. RareMe Ngwa Mkpanaka Ekwentị na-emezu mkpa nke ọma, na-emetụ ọchịchọ aka, na-adọrọ mmetụta obi ma na-adọta ọchịchọ ịmara.

N'azụ Nhazi a

Ngwugwu Mgbasa Ozi

Nkwurịta okwu, ndị otu na nkọwa teknụzụ nke onye nhazi nyere.

Àgwà Pụrụ Iche: Rare diseases are currently affecting about 300 million patients worldwide. Due to their rare conditions, they cannot get the same degree of treatment and assistance as normal patients, especially in some developing countries. RareMe helps rare diseases patients with their recovery and therapy. By connecting with global medical research, institutions, hospitals, doctors, and drug developers, they can receive equal attention and care.
Nha & Mkpuchi: Launched on IOS and Android
Mkpado: Rare Disease, app, patients, crowd-funding, mutual aid
Teknụzụ Mmepụta: RareMe is an APP,which connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc. It also links rare disease patients with similar conditions with medical workers through intelligent recommendation algorithm, so as to make them feel not alone.
Ịma Aka Imepụta: RareMe connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc.

The biggest problem is to contact all stakeholders, promote app through hospitals, medical institutions, and major media platforms, so that patients scattered around the world can know and join RareMe. With the help of a large number of patients gathering to solve the problem of drug research and distribution by low-cost crowdfunding.
Nchọpụta: Rare diseases are currently affecting 3.5% - 5.9% of the worldwide population. There are more than 7,000 rare diseases known in the world, however, only less than 10% of the diseases have approved treatment drugs or programs.

Based on this huge social problem, we have conducted extensive interviews with medical professors of Harvard University and Medical Laboratory of Zhejiang University, and are eager to connect rare disease patients around the world in a simple and portable way. We have connected many medical workers and patients via the development of RareMe. In order to improve this current condition, we will add in more and more health-care providers in the future.
Mkpali: Rare diseases are lately affecting 3.5% - 5.9% of the worldwide population. More than 7,000 rare diseases are known, however, only less than 10% have approved treatment cures or programs. Due to the patients’ rare conditions, they’re not able to get the same degree of care and assistance as normal patients. Moreover, proper medicines and treatments are not available in some developing countries. They have few wardmates to communicate with, either.
Oge Ọrụ: This project started in September 2019 in Hangzhou, China, and it is still under developing.
Usoro Ọrụ: At the beginning of registration, user will choose their own role as patients/family members or health-care providers, then enter the home page. Patients can write disease fighting diaries, seek for other users who have similar syndromes and fight together. They can also seek drugs and treatments around the world. As for health-care providers, they can contact patients quickly via RareMe and offer help.
Ndị Otu: Cong Fang
Shijian Luo
Jingzhao Pan
Tianhe Zhang
Huan Lin
Asụsụ Foto: The four images used in the app design are from the SHETU website(https://699pic.com/), and have been authorized. The authorization agreement is shown in the link
Link: https://pan.baidu.com/s/1-s5VTAN_XWqHc2ZyToIegQ
Password：70bo