RareMe Tazwart Tagejdant: Asnas Amutel sɣur Cong Fang, Shijian Luo and Jingzhao Pan d anerbaz yettwaqadren meqqren n 2021 Tarbaḥt A' Design Award n Lbrunz deg Taggayt n Tnaflit n Afeṣṣel n Tetiknulujiyin Tizirawin, Isnasen d Useɣẓan.
LbrunzAziraw· 2021
RareMe Tazwart Tagejdant: Asnas Amutel
sɣur Cong Fang, Shijian Luo and Jingzhao Pan
Amsaɣ: Zhejiang University
Anerbaz n Tarbaḥt A' Design Award n Lbrunz deg Taggayt n Aziraw
Anerbaz n Urraz Yettwasenqden
Senqed Addad n Urraz i #111937Afeṣṣel
Ɣef RareMe Tazwart Tagejdant: Asnas Amutel
Aḍris n Tektabt: RareMe d asnas amutel i yimdanen yettwamsen s tuɣmasin idrusen (imuḍan idrusen). RareMe yeqqen imuḍanen d twacult-nsen ɣer sbiṭaren, tinbaḍin tijjiganin, tferkyawin n ddwa, tebibin akked wid yettxeddmen ddwa. Ineqqisen ttxeṛṛiḍen amur amzun d amuḍan, d amdan n twacult neɣ d amaḍal n tejjigin deg wesqadem. Imuḍanen zemren ad arun tiwlafin n wass ɣef ddwa-nsen, ad nadin ddwa d treḍwin di umaḍal meṛṛa, ttafen ineqqisen niḍen s waṭas n tuɣmas s useqdec n uwaralen n usnirem. Asnas yella deg iOS akked Android. Awennit d asmenyif n uɛessas d usaḍuf i imuḍanen s tuɣmasin idrusen am wiyaḍ.
Asmekti
Ɣef Tarbaḥt A' Design Award n Lbrunz
RareMe Tazwart Tagejdant: Asnas Amutel d amerbaḥ n Tarbaḥt A' Design Award n Lbrunz, tagmat ɛlayen i yisnulfa yelhan, yeṭṭafaren tinawt, tamusni d tezmert. Imerbaḥen n Lbrunz d isnulfa yelhan, ttbanen d timusniwin n tmusni n yimahilen-nsen. RareMe Tazwart Tagejdant: Asnas Amutel ad yili d asnulfu yettwaɛezzen, yelhan, amaynut. RareMe Tazwart Tagejdant: Asnas Amutel yettemlil ɣef yimawlan, yettwaɛezzen s tmahilt-is.
Deffir n ufeṣṣel
Tagrurt n tɣamsa
Ismawen n terbaɛt, iferdisen itiknikanen akked telɣut i d-yefka umeṣṣufeɣ.
- Taɣara Tasuft
- Rare diseases are currently affecting about 300 million patients worldwide. Due to their rare conditions, they cannot get the same degree of treatment and assistance as normal patients, especially in some developing countries. RareMe helps rare diseases patients with their recovery and therapy. By connecting with global medical research, institutions, hospitals, doctors, and drug developers, they can receive equal attention and care.
- Tigejdiwin & Akemmus
- Launched on IOS and Android
- Tibzimin
- Rare Disease, app, patients, crowd-funding, mutual aid
- Tasnakta n Ufares
- RareMe is an APP,which connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc. It also links rare disease patients with similar conditions with medical workers through intelligent recommendation algorithm, so as to make them feel not alone.
- Asewḥel n Usnulfu
- RareMe connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc.
The biggest problem is to contact all stakeholders, promote app through hospitals, medical institutions, and major media platforms, so that patients scattered around the world can know and join RareMe. With the help of a large number of patients gathering to solve the problem of drug research and distribution by low-cost crowdfunding. - Anadi
- Rare diseases are currently affecting 3.5% - 5.9% of the worldwide population. There are more than 7,000 rare diseases known in the world, however, only less than 10% of the diseases have approved treatment drugs or programs.
Based on this huge social problem, we have conducted extensive interviews with medical professors of Harvard University and Medical Laboratory of Zhejiang University, and are eager to connect rare disease patients around the world in a simple and portable way. We have connected many medical workers and patients via the development of RareMe. In order to improve this current condition, we will add in more and more health-care providers in the future. - Aseḥbiber
- Rare diseases are lately affecting 3.5% - 5.9% of the worldwide population. More than 7,000 rare diseases are known, however, only less than 10% have approved treatment cures or programs. Due to the patients’ rare conditions, they’re not able to get the same degree of care and assistance as normal patients. Moreover, proper medicines and treatments are not available in some developing countries. They have few wardmates to communicate with, either.
- Tanzagt n Usenfar
- This project started in September 2019 in Hangzhou, China, and it is still under developing.
- Tanila n Umahil
- At the beginning of registration, user will choose their own role as patients/family members or health-care providers, then enter the home page. Patients can write disease fighting diaries, seek for other users who have similar syndromes and fight together. They can also seek drugs and treatments around the world. As for health-care providers, they can contact patients quickly via RareMe and offer help.
- Igmamen n Terbaɛt
- Cong Fang
Shijian Luo
Jingzhao Pan
Tianhe Zhang
Huan Lin - Imsuren n Tugniwin
- The four images used in the app design are from the SHETU website(https://699pic.com/), and have been authorized. The authorization agreement is shown in the link
Link: https://pan.baidu.com/s/1-s5VTAN_XWqHc2ZyToIegQ
Password：70bo
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