RareMe Umsebenzi Wemobhayile ngu-Cong Fang, Shijian Luo and Jingzhao Pan

Uyilo olubizwa ngokuba yi-RareMe Umsebenzi Wemobhayile olwenziwe ngu-Cong Fang, Shijian Luo and Jingzhao Pan ngumwini obekekileyo webhaso elinobukhazikhazi le-2021 Ibhaso Lebhronzi le-A' Design Award Kudidi Lokhuphiswano lwe-Uyilo loBuxhakaxhaka beMobhayili, iiAplikeyishini kunye neSoftwe.

IbhronziImobhayili· 2021

RareMe Umsebenzi Wemobhayile

ngu Cong Fang, Shijian Luo and Jingzhao Pan

Umxhasi: Zhejiang University

Umwini we-Ibhaso Lebhronzi le-A' Design Award Kudidi Lwe-Imobhayili

16,439

Umwini Webhaso Oqinisekisiweyo

Qinisekisa Isimo Sebhaso se-#111937

Jonga kwi-A' Design Award Uxwebhu Lweendaba Ibheji Yembasa

Imibala

Uyilo

Malunga ne-RareMe Umsebenzi Wemobhayile

RareMe yi-application yeselula eyenzelwe abantu abachaphazeleka zizifo ezinqabileyo. I-RareMe idibanisa iziguli neentsapho zazo nezibhedlele, amaziko ezonyango, iifamasi, oogqirha kunye nabaphuhlisi bamayeza. Abasebenzisi bakhetha indima njengesiguli, ilungu losapho okanye umnikezeli wenkonzo yezempilo ngexesha lokubhalisa. Iziguli zinako ukubhala iidayari malunga nonyango lwazo, zikhangele amayeza noqheliselo lonyango kwihlabathi jikelele, kwaye zifumane abanye abasebenzisi abaneemeko ezifanayo ngokusebenzisa i-algorithm yezincomo. Le application ifumaneka kwi-iOS nakwi-Android. Injongo kukunika iziguli ezinezifo ezinqabileyo ingqalelo nokhathalelo olulinganayo.

Ukuqatshelwa

Malunga ne-Ibhaso Lebhronzi le-A' Design Award

RareMe Umsebenzi Wemobhayile ngumphumeleli weIbhaso Lebhronzi le-A' Design Award, ukuqatshelwa okuhlonitshwayo kakhulu okunikwa imiyilo ephawulekayo eyahlukaniswa kukuyila, ubukrelekrele nobukrelekrele. Abaphumeleleyo beBhronzi ziimveliso ezinobuchule obukhulu nezidala ngokumangalisayo ezingqina amava aphangaleleyo, ukucinga nokwazi ukuzenzela kwabayili bazo. RareMe Umsebenzi Wemobhayile iyathenjwa ukuba ibe yimpahla exatyiswa kakhulu, edunyiswayo nethandwayo enobungcali obuphawulekayo nezinto ezintsha. Lo myilo uphumeleleyo weIbhaso Lebhronzi le-A' Design Award ubandakanya iindlela ezilungileyo kakhulu kubugcisa, inzululwazi, uyilo kunye nobuchwephesha kwaye ugqwesile ngenxa yokunikela ingqalelo kwiinkcukacha. RareMe Umsebenzi Wemobhayile iyanelisa iimfuno ngokumangalisayo, ichukumisa iinqwenelo, ikhwebela iimvakalelo kwaye itsala umdla.

Emva Koyilo

Ikhithi Yeendaba

Iziqinisekiso, amalungu eqela kunye neenkcukacha zobugcisa ezinikezelwe ngumyili.

Iimpawu Ezizodwa: Rare diseases are currently affecting about 300 million patients worldwide. Due to their rare conditions, they cannot get the same degree of treatment and assistance as normal patients, especially in some developing countries. RareMe helps rare diseases patients with their recovery and therapy. By connecting with global medical research, institutions, hospitals, doctors, and drug developers, they can receive equal attention and care.
Imilinganiselo nePakishini: Launched on IOS and Android
Iithegi: Rare Disease, app, patients, crowd-funding, mutual aid
Ubuchwepheshe Bokuvelisa: RareMe is an APP,which connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc. It also links rare disease patients with similar conditions with medical workers through intelligent recommendation algorithm, so as to make them feel not alone.
Umngeni Woyilo: RareMe connects patients and their families with health-care providers, such as hospitals, medical institutions, pharmacies, doctors, drug developers, pharmaceuticals companies, etc.

The biggest problem is to contact all stakeholders, promote app through hospitals, medical institutions, and major media platforms, so that patients scattered around the world can know and join RareMe. With the help of a large number of patients gathering to solve the problem of drug research and distribution by low-cost crowdfunding.
Uphando: Rare diseases are currently affecting 3.5% - 5.9% of the worldwide population. There are more than 7,000 rare diseases known in the world, however, only less than 10% of the diseases have approved treatment drugs or programs.

Based on this huge social problem, we have conducted extensive interviews with medical professors of Harvard University and Medical Laboratory of Zhejiang University, and are eager to connect rare disease patients around the world in a simple and portable way. We have connected many medical workers and patients via the development of RareMe. In order to improve this current condition, we will add in more and more health-care providers in the future.
Inkuthazo: Rare diseases are lately affecting 3.5% - 5.9% of the worldwide population. More than 7,000 rare diseases are known, however, only less than 10% have approved treatment cures or programs. Due to the patients’ rare conditions, they’re not able to get the same degree of care and assistance as normal patients. Moreover, proper medicines and treatments are not available in some developing countries. They have few wardmates to communicate with, either.
Ubude Beprojekthi: This project started in September 2019 in Hangzhou, China, and it is still under developing.
Ukuhamba Komsebenzi: At the beginning of registration, user will choose their own role as patients/family members or health-care providers, then enter the home page. Patients can write disease fighting diaries, seek for other users who have similar syndromes and fight together. They can also seek drugs and treatments around the world. As for health-care providers, they can contact patients quickly via RareMe and offer help.
Amalungu Eqela: Cong Fang
Shijian Luo
Jingzhao Pan
Tianhe Zhang
Huan Lin
Amagunya Emifanekiso: The four images used in the app design are from the SHETU website(https://699pic.com/), and have been authorized. The authorization agreement is shown in the link
Link: https://pan.baidu.com/s/1-s5VTAN_XWqHc2ZyToIegQ
Password：70bo